I have been debating for some time whether or not I
should share what I have been going through over the past few years. This isn’t easy for me to share. I am normally a very private person but I
think that maybe in sharing what I am going through it will help people to
understand me better. I may also find
more people for support if I need or people I can reach out to if I need. I am not looking for any sympathy or anything
like that – just want people to know what I am going through.
It started about 2 years ago when I thought I was
having a heart attack. I didn’t have
one, and I am glad that the Doctor at the emergency department decided to send
me for some tests. After wearing a
holter monitor, many EKG’s, a few echocardiograms, a stress test and a 2 hour
MRI as well as seeing a Cardiologist and an Electrophysiologist it was
concluded that I have a SVT (Supraventricular Tachycardia).
Then comes February 20th, 2018. I
went to work feeling fine. Halfway
through the day I got a headache and pains in my neck and shoulder. Finished off the day and went home and tried
a few things to try to feel better. I
was so sick for 6 weeks. I had a
headache that lasted 2 ½ weeks and a fever that lasted for a month. Nothing I did helped with the headache or
fever.
On Feb 23rd went to my doctor and had blood
taken, had xrays and an EKG. All results
came back normal. March 8th
was my first appointment with an Infectious Disease doctor. Had some bloodwork done – results came back
normal. Had a CT scan done due to a
lump on my neck. Everything is okay with
that. March 15th went back to
see my Infectious Disease doctor – more bloodwork. Still feel so sick. April 5th back to see the
Infectious disease doctor to get results from the bloodwork. Was told that my rheumatoid factor is
high. Am than referred to a
Rheumatologist. Was told to come back in
6 months (Dec 2018) to do more blood work and see if my rheumatoid factor is
still high and to see if anything else shows up.
Between April 2018 and now I have good days and bad
days. Sometimes I get so tired that I
need to cancel plans with people or I’m not able to do so much and I feel so
bad. Right now I have more good days
than bad and I am so grateful for that.
I currently experience joint pain, exhaustion, flushed face, random hives/rashes that come
and go, stomach issues, eye issues, bladder infections. Am currently waiting for an abdominal
ultrasound and an appointment with an eye specialist.
I am so lucky that what I am going through hasn’t
affected my ability to work and I haven’t really had to change what I do. I have been learning how to listen to my body
and rest when I need and to not push myself.
I am trying to focus on the positive things in my life when some days
are more trying than others. I still
need to work on exercising more and to try to eat better but you sure do learn a
lot about yourself, etc when you are going through medical issues. All the information and the unknown can be very scary, frustrating, uncertain, etc. I haven't been prescribed anything as of yet until they figure out what is going on. Some days are so confusing. I'm trying hard to open up more and am trying to ask for help when I need it - something that is easier said than done.
I am starting to be more aware to others
around me – you never know what someone may be going through or feeling – even if
they look okay.
I am learning that writing things down is very theraputic to me and will be using this blog as a means to do this.
Thank you for sharing with us :)
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